Join our private Facebook group for parents of children with Potocki-Lupski Syndrome (PTLS) This community is a safe, supportive space where we can come together to share experiences, advice, and support one another on our unique journeys. Whether your child is a newborn or navigating adolescence & beyond, you'll find parents here with children of all ages.

Our group is dedicated to providing a confidential environment where members can connect, ask questions, and find solidarity among fellow parents facing similar challenges and triumphs. With new members joining daily, our community continues to grow, offering fresh perspectives and a wealth of knowledge to draw from.

Join us as we navigate this journey together, celebrating victories, offering support through challenges, and building lasting connections with parents who truly understand.

There is also a UK only specific Facebook group for families navigating the challenges specific to the UK healthcare & educational systems