⭐️ Meet our fundraising STARS!! ⭐️

We would be delighted to feature your PTLS Hope fundraising story among our stars! Please send it our way, and we'll be happy to share your inspiring efforts with our community.

Celebrating Jamison and Supporting PTLS Hope: A Heartfelt Pampered Chef Fundraiser.

I am thrilled to share that we recently hosted a Pampered Chef party to honor my son, Jamison, while also raising awareness and funds for the PTLS Hope Research Foundation.

It was a wonderful opportunity to come together with friends and family, enjoy some delicious food, and support a cause that is incredibly close to our hearts.

During the August promotion, we were excited to learn that 30% of our sales would be donated back to the foundation. Thanks to the generosity of our guests and the fantastic Pampered Chef products, we managed to generate total sales of $1,500! This means that we were able to contribute an impressive $450 directly to PTLS Hope.

I am so grateful for everyone's support, which will help further the important research and resources for those affected by PTLS. It was a heartwarming experience, and I couldn't have asked for a better way to celebrate Jamison while making a positive impact in our community.

Thank you once again to everyone who attended and contributed!

Shelly Kroetch x

Jamison & his sister Stella

Luciana raised over $300

Luciana's baby sister Jimena, was diagnosed with Potocki Lupski Sydnrome. She has been one of Jimena's biggest cheerleaders and supporters. From learning lots of extra signs to help communicate with her, to being extremely patient while Jimena learns new things, - Luciana demonstrates her love to her baby sister everyday. One Saturday morning, as we were working spring cleaning, Luciana suggested that we sell some of her toys and donate the proceeds to the Potocki Lupski Hope Research Foundation. We were all inspired by her suggestion and decided to make it happen.  We gathered toys she no longer needed and put up a yard sale! Luciana was a great sales person haha flagging and waiving cars down that drove by. In total she raised over $300! Every dollar makes an impact for the foundation and is one step closer to our goal! “Thank you, Luciana!"

10k run raised over $4,000!

Gov, Gilbert, and Nicholas took on the challenge of running 10k along with 1k burpees along the beach front . They established a crowdfunding page and set a fundraising goal on JustGiving in the UK to gather donations from family, friends, and colleagues in support of PTLS Hope's Strides for Hope initiative. After completing their run successfully, they managed to raise over $4,000 for the foundation. The money will go towards our PTLS Hope research fund at Baylor College of Medicine - Thank you guys! x

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PTLS mom Raised - $2000

Mandy mom to Wren, 2 - Raised $2000 with a simple just giving crowdfunding page, “instead of presents for christmas & birthdays I kindly asked for donations to the foundation instead so we can do some great work towards sponsoring more studies & ultimately finding a PTLS treatment”

She created the page to share Wrens story and then gave the link out to family & friends to easily & quickly make donations to PTLS Hope Research Foundation.

If you would like to do the same we can help you set up your own page where you can share your personal PTLS story & raise money for vital Potocki Lupski Syndrome research initiatives.

Have a ‘fundraising stars’ story to share?

Contact us.

info@ptlshope.org