Join our team!

Welcome to our Quick Wins - Small Tasks section! Here, we believe that even the smallest actions can make a big impact. Whether you have a few minutes or a couple of hours to spare, there are plenty of ways you can contribute to our cause. Dive into our list of tasks and find the perfect opportunity to lend a hand and be a part of something meaningful. Every little bit counts, and together, we can create positive change.

Please drop us a message on the apply now link below to see what open tasks we have available.

Thank You!

Responsibilities:

Develop and implement comprehensive fundraising strategies and initiatives to support the mission and goals of the PTLS Hope Research Foundation.

Identify and cultivate relationships with donors, sponsors, and corporate partners to secure financial support for PTLS research, programs, and initiatives.

Plan and execute fundraising events, campaigns, and activities, including donor cultivation events, online crowdfunding campaigns, and community outreach initiatives.

Create compelling fundraising appeals, donation materials, and sponsorship packages to engage donors and supporters and inspire philanthropic giving.

Manage donor communications and stewardship efforts, including acknowledgment letters, donor recognition programs, and personalized outreach to cultivate donor relationships and enhance donor retention.

Collaborate with internal teams, including marketing, communications, and finance, to ensure alignment and integration of fundraising efforts with overall organizational objectives and messaging.

Research and identify potential grant opportunities

Track fundraising metrics and performance indicators, prepare reports and updates and use data-driven insights to optimize fundraising strategies and tactics.

Stay informed about trends and best practices in fundraising and philanthropy to continually enhance the Foundation's fundraising efforts and maximize revenue generation.

Deliverables:

Comprehensive fundraising strategies and initiatives implemented to support PTLS research, programs, and initiatives.

Donor relationships cultivated and financial support secured from donors, sponsors, and corporate partners.

Successful planning and execution of fundraising events, campaigns, and activities, resulting in increased revenue and donor engagement.

Compelling fundraising appeals, donation materials, and sponsorship packages created to inspire philanthropic giving.

Effective donor communications and stewardship efforts implemented to cultivate donor relationships and enhance donor retention.

Grant opportunities identified and pursued / applied for

Fundraising metrics and performance indicators tracked and analyzed

Continuous improvement of fundraising strategies and tactics through staying informed about trends and best practices in fundraising and philanthropy.

Maximization of revenue generation and financial support for PTLS research and initiatives through successful fundraising efforts.

Responsibilities:

Research and review existing Individualized Education Program (IEP) templates and guidelines to understand best practices and legal requirements.

Collaborate with the non-profit foundation's team to identify specific needs and requirements for the IEP template.

Design and develop a comprehensive IEP template that aligns with legal standards, reflects evidence-based practices, and meets the unique needs of children with PTLS.

Include sections for student demographics, present levels of academic achievement and functional performance, measurable annual goals, progress monitoring, accommodations and modifications, related services, transition planning, and parental input. (we need Adriana to look at this one and see what all we need to include)

Ensure the IEP template is user-friendly and accessible for educators, parents, and other stakeholders, with clear instructions and guidance provided throughout.

Pilot test the IEP template with a sample group of educators and stakeholders to gather feedback and identify areas for improvement.

Deliverables:

Comprehensive IEP template document, including all required sections and components, formatted for ease of use and customization.

Detailed instructions and guidance for completing each section of the IEP template, including examples and best practices.

Training materials and resources for educators and staff members on how to use the IEP template effectively.

Pilot testing report summarizing feedback received from educators and stakeholders, along with recommendations for revisions.

Revised and finalized version of the IEP template based on feedback and testing results.

Support and assistance provided to educators and staff members during the implementation phase, including troubleshooting and addressing any issues that arise.

Ongoing support and updates provided as needed to ensure the continued relevance and usefulness of the IEP template over time.

Responsibilities:

Develop engaging and informative content to raise awareness about the PTLS Hope Research foundation's mission, programs, and services for individuals with PTLS.

Create multimedia content, including articles, blog posts, videos, infographics, social media posts, and podcasts, that highlight the stories and experiences of individuals with PTLS and their families.

Research and stay informed about current issues, trends, and developments in the field of special needs education, advocacy, and support services.

Collaborate with other team members, including educators, therapists, and administrators, to generate ideas and content that address the needs and interests of the PTLS Hope Research Foundation's target audience.

Tailor content to different platforms and audiences, ensuring consistency in messaging and branding across all channels.

Utilize search engine optimization (SEO) techniques and social media strategies to increase the reach and visibility of the foundation's content.

Monitor and analyze the performance of content using analytics tools to identify trends, measure engagement, and inform future content strategies.

Respond to comments, inquiries, and feedback from followers and supporters on social media platforms and other channels.

Coordinate with external partners, influencers, and collaborators to amplify the foundation's message and reach new audiences.

Stay up-to-date on best practices and emerging trends in content creation, storytelling, and digital marketing to continually improve the effectiveness and impact of the foundation's content.

Deliverables:

Regularly published articles, blog posts, and other written content that educates, informs, and inspires the PTLS Hope Research Foundation's audience.

High-quality videos, podcasts, and multimedia content that showcase the stories and achievements of individuals with PTLS and highlight the impact of the foundation's programs and services.

Infographics, visualizations, and other visual content that communicate key messages and data in a clear and engaging manner.

Social media posts, campaigns, and promotions that drive engagement, increase awareness, and encourage support for the foundation's initiatives.

Collaborative partnerships and content collaborations with influencers, organizations, and brands to expand the foundation's reach and influence.

Analytics reports and performance metrics tracking engagement, reach, and impact of content across different platforms and channels.

Community engagement and interaction, including responding to comments, messages, and inquiries from followers and supporters.

Contribution to the development of content calendars, editorial schedules, and strategic plans for content creation and distribution.

Training and support provided to staff members and volunteers on best practices for creating and sharing content that aligns with the foundation's mission and goals.

Continuous improvement and optimization of content strategies based on feedback, analytics, and evolving trends in digital media and communication.

Responsibilities:

Create engaging and compelling content for the PTLS Hope Research Foundation's website, and social media channels, including Facebook, Instagram & linkedin

Develop content strategies and editorial calendars to ensure consistent and timely publication of content across all digital platforms.

Write clear, concise, and persuasive copy for website pages, blog posts, articles, newsletters, email campaigns, and other digital marketing materials.

Conduct research on PTLS-related topics, advancements in medical research, and stories of hope and resilience within the PTLS community to inform content creation.

Produce downloadable resources, information packs, and family articles addressing various aspects of PTLS, including symptoms, treatments, coping strategies, and support resources.

Collaborate with internal teams, including marketing, communications, and fundraising, to align content with organizational objectives, messaging, and branding guidelines.

Optimize content for search engines (SEO) and social media algorithms to increase visibility, engagement, and traffic to the Foundation's digital properties.

Monitor and analyze website and social media performance metrics, track audience engagement and feedback, and use insights to refine content strategies and tactics.

Ensure accuracy, consistency, and adherence to brand voice and style guidelines in all written content produced for the Foundation.

Deliverables:

Engaging and compelling content created for the Foundation's website, and social media channels, driving awareness, engagement, and support for PTLS research and initiatives.

Content strategies and editorial calendars developed and implemented to ensure consistent and timely publication of content across digital platforms.

Clear, concise, and persuasive copy written for website pages, blog posts, articles, newsletters, and email campaigns, reflecting the Foundation's mission and goals.

Research-based content produced on PTLS-related topics, medical advancements, and stories of hope within the PTLS community to educate and inspire audiences.

Creation of downloadable resources, information packs, and family articles providing valuable information and support for individuals and families affected by PTLS.

Collaboration with internal teams to align content with organizational objectives, messaging, and branding guidelines, fostering a unified and cohesive online presence.

Optimized content for SEO and social media algorithms, resulting in increased visibility, engagement, and traffic to the Foundation's digital properties.

Consistent delivery of accurate, high-quality content that reflects the Foundation's values and commitment to advancing PTLS research

Responsibilities:

Develop and implement strategic public relations campaigns to raise awareness about Potocki-Lupski Syndrome (PTLS) and the mission of the PTLS Hope Research Foundation.

Create compelling press releases, media kits, and other PR materials to promote PTLS awareness initiatives, research findings, and fundraising events.

Establish and nurture relationships with members of the media, including journalists, bloggers, and influencers, to secure press coverage for PTLS-related stories and events.

Serve as the primary spokesperson for the PTLS Hope Research Foundation, conducting interviews and representing the organization at public events, conferences, and speaking engagements.

Monitor media coverage and social media trends related to PTLS and engage with followers to amplify the Foundation's message and foster community engagement.

Collaborate with internal teams, including research scientists, fundraising coordinators, and marketing specialists, to align PR efforts with organizational goals and initiatives.

Provide strategic counsel to senior leadership on PR strategies, crisis communications, and reputation management.

Develop and maintain a comprehensive media contact list and database to facilitate outreach and communication efforts.

Stay informed about industry trends, best practices, and emerging technologies in PR and communications to continually enhance the Foundation's outreach efforts.

Deliverables:

Press releases, media kits, and PR materials promoting PTLS awareness initiatives, research findings, and fundraising events.

Media coverage secured for PTLS-related stories and events in print, broadcast, and online outlets.

Engagement with journalists, bloggers, and influencers to amplify the Foundation's message and foster community engagement.

Successful representation of the Foundation at public events, conferences, and speaking engagements.

Regular monitoring and analysis of media coverage and social media trends related to PTLS.

Comprehensive media contact list and database maintained to facilitate outreach and communication efforts.

Reports and insights on the effectiveness of PR campaigns and initiatives to inform future strategies and tactics.

Continual enhancement of PR and communications efforts through staying informed about industry trends and best practices.

Responsibilities:

Conduct research on existing laws, regulations, and legislation related to special needs individuals.

Monitor proposed legislation at local, state, and federal levels that could impact individuals with special needs.

Analyze the potential impact of proposed laws and regulations on the special needs community.

Develop and maintain relationships with key stakeholders, including government officials, senators, and policymakers.

Serve as a point of contact for government agencies, advocacy groups, and community organizations regarding PTLS issues.

Prepare reports, briefings, and presentations to educate policymakers and stakeholders on relevant issues pertaining to Potocki-Lupski Syndrome.

Advocate for the interests of individuals with Potocki-Lupski Syndrome by communicating with senators, legislators, and other elected officials.

Collaborate with legal experts to provide guidance on the interpretation and implementation of laws affecting individuals with Potocki-Lupski Syndrome.

Coordinate advocacy efforts with other organizations and advocacy groups working in the field of special needs.

Stay informed about best practices, emerging trends, and innovative solutions in special needs advocacy and legislation.

Deliverables:

Regular updates on relevant laws, regulations, and legislation affecting individuals with PTLS.

Briefing materials and presentations for government officials, senators, and policymakers.

Documentation of meetings, communications, and interactions with government agencies and stakeholders.

Analysis reports on the potential impact of proposed legislation on the PTLS community.

Advocacy letters, petitions, and other materials to support legislative initiatives benefiting individuals with PTLS.

Collaborative partnerships with government agencies, advocacy groups, and community organizations to advance the rights and interests of individuals with PTLS.

Recommendations for policy changes or improvements to better support individuals with PTLS.

Responsibilities:

Provide pro bono legal advice and counsel to the PTLS Hope Research Foundation on matters related to nonprofit governance, compliance, contracts, intellectual property, and other legal issues.

Review and draft legal documents, including bylaws, policies, contracts, and agreements, ensuring compliance with applicable laws, regulations, and best practices.

Advise the Foundation's leadership team on legal risks, liabilities, and opportunities associated with organizational activities, initiatives, and partnerships.

Assist in the establishment and maintenance of nonprofit status, tax-exempt status, and compliance with state and federal regulations governing charitable organizations.

Represent the Foundation's interests in legal proceedings, negotiations, and transactions, as needed, advocating for the protection of the Foundation's rights and interests.

Conduct legal research on relevant legal issues, statutes, regulations, and case law to inform decision-making and legal strategies.

Collaborate with external legal counsel, advisors, and consultants, as necessary, to address complex legal matters and ensure comprehensive legal support for the Foundation.

Participate in board meetings, committee meetings, and strategic planning sessions to provide legal insights and guidance on matters impacting the Foundation's mission and operations.

Deliverables:

Legal documents reviewed and drafted, including bylaws, policies, contracts, and agreements, to support the Foundation's operations, initiatives, and partnerships.

Comprehensive legal analysis and risk assessments conducted to identify and mitigate legal risks and liabilities associated with organizational activities and decision-making.

Nonprofit status, tax-exempt status, and regulatory compliance maintained through proactive legal support and adherence to state and federal laws governing charitable organizations.

Representation of the Foundation's interests in legal proceedings, negotiations, and transactions, with legal advocacy aimed at safeguarding the Foundation's rights and interests.

Legal research conducted on relevant legal issues, statutes, regulations, and case law, providing informed guidance and support for decision-making and legal strategies.

Active participation in board meetings, committee meetings, and strategic planning sessions, offering legal insights and guidance to support the Foundation's mission and objectives.

legal services delivered with professionalism, integrity, and dedication, reflecting the Foundation's commitment to advancing PTLS research and support initiatives through ethical and effective legal advocacy.

Description:

PTLS Hope Research Foundation is seeking passionate and dedicated researchers to join our team in the quest to advance understanding and treatment options for Potocki-Lupski Syndrome (PTLS). As a researcher with PTLS Hope, you will have the opportunity to contribute to groundbreaking research initiatives aimed at improving the lives of individuals affected by PTLS and their families.

Responsibilities:

Conducting literature reviews and staying abreast of the latest developments in PTLS research.

Designing and implementing research studies to explore various aspects of PTLS, including genetics, neurodevelopmental outcomes, and potential therapeutic interventions.

Collecting and analyzing data from diverse sources, including clinical trials, patient registries, and epidemiological studies.

Collaborating with multidisciplinary teams of scientists, clinicians, and patient advocates to drive research forward.

Presenting research findings at scientific conferences and publishing results in peer-reviewed journals.

Participating in grant writing and fundraising efforts to secure funding for research projects.

Contributing to the development of educational materials and resources for the PTLS community.

Qualifications:

Graduate degree (Masters or Ph.D.) in a relevant field such as genetics, neuroscience, molecular biology, or related disciplines.

Previous research experience, particularly in genetics or neurodevelopmental disorders, is preferred but not required.

Strong analytical and critical thinking skills.

Excellent written and verbal communication skills.

Ability to work independently and as part of a collaborative team.

Commitment to the mission and values of PTLS Hope Research Foundation.

Description:

PTLS Hope Research Foundation is seeking passionate and dedicated researchers to join our team in the quest to advance understanding and treatment options for Potocki-Lupski Syndrome (PTLS). As a researcher with PTLS Hope, you will have the opportunity to contribute to groundbreaking research initiatives aimed at improving the lives of individuals affected by PTLS and their families.

Responsibilities:

Conducting literature reviews and staying abreast of the latest developments in PTLS research.

Designing and implementing research studies to explore various aspects of PTLS, including genetics, neurodevelopmental outcomes, and potential therapeutic interventions.

Collecting and analyzing data from diverse sources, including clinical trials, patient registries, and epidemiological studies.

Collaborating with multidisciplinary teams of scientists, clinicians, and patient advocates to drive research forward.

Presenting research findings at scientific conferences and publishing results in peer-reviewed journals.

Participating in grant writing and fundraising efforts to secure funding for research projects.

Contributing to the development of educational materials and resources for the PTLS community.

Qualifications:

Graduate degree in a relevant field such as genetics, neuroscience, molecular biology, or related disciplines.

Previous research experience, particularly in genetics or neurodevelopmental disorders, is preferred but not required.

Strong analytical and critical thinking skills.

Excellent written and verbal communication skills.

Ability to work independently and as part of a collaborative team.

Commitment to the mission and values of PTLS Hope Research Foundation.

Description:

PTLS Hope Research Foundation is seeking passionate and dedicated researchers to join our team in the quest to advance understanding and treatment options for Potocki-Lupski Syndrome (PTLS). As a researcher with PTLS Hope, you will have the opportunity to contribute to groundbreaking research initiatives aimed at improving the lives of individuals affected by PTLS and their families.

Responsibilities:

Conducting literature reviews and staying abreast of the latest developments in PTLS research.

Designing and implementing research studies to explore various aspects of PTLS, including genetics, neurodevelopmental outcomes, and potential therapeutic interventions.

Collecting and analyzing data from diverse sources, including clinical trials, patient registries, and epidemiological studies.

Collaborating with multidisciplinary teams of scientists, clinicians, and patient advocates to drive research forward.

Presenting research findings at scientific conferences and publishing results in peer-reviewed journals.

Participating in grant writing and fundraising efforts to secure funding for research projects.

Contributing to the development of educational materials and resources for the PTLS community.

Qualifications:

Undergrad or student in a relevant field such as genetics, neuroscience, molecular biology, or related disciplines.

Previous research experience, particularly in genetics or neurodevelopmental disorders, is preferred but not required.

Strong analytical and critical thinking skills.

Excellent written and verbal communication skills.

Ability to work independently and as part of a collaborative team.

Commitment to the mission and values of PTLS Hope Research Foundation.