Where: Texas Children’s Hospital, Texas, USA
When: 27th & 28th February 2025
We’re excited to return for our second year at the Rare Disease Day Bridge Event at Texas Children’s Hospital! The PTLS Hope Research Foundation will once again have a table where we’ll be sharing information, goodies, and our mission to create a brighter future for families impacted by Potocki-Lupski Syndrome (PTLS).
Stop by to:
Learn about Potocki-Lupski Syndrome and the important research initiatives we have in the pipeline, including drug Development /discovery, the Clinical Bio Marker Study & a Potential ASO Therapy.
Grab some goodies and materials to help raise awareness and educate others about PTLS.
Chat with the PTLS Hope team—and you might even run into Dr. Potocki herself!
We’re honoured to participate in this incredible event for the second year, connecting with the rare disease community and sharing our vision for advancing research and creating meaningful change.
Join us to learn, connect, and help spread hope for the PTLS community!