Celebrate World PTLS Day – March 8th

Join us on March 8th as we come together to honour World PTLS Day, a day dedicated to raising awareness for Potocki-Lupski Syndrome (PTLS) and celebrating the strength of individuals and families impacted by this rare genetic disorder.

This special day is an opportunity to:

• Raise Awareness: Help shine a light on PTLS, its challenges, and the need for research.

• Celebrate Progress: Highlight the advancements in PTLS research, including our groundbreaking drug discovery/ development programs and ASO gene Therapy initiatives.

• Share Stories of Hope: Uplift the voices of families and individuals living with PTLS to inspire compassion and understanding.

Here’s how you can get involved:

• Wear Green: Show your support by wearing the official PTLS awareness colours.

• Share on Social Media: Use the hashtag #ptlshope to spread awareness and share why this cause matters to you.

• Donate: Contribute to ongoing research efforts and help us get closer to developing life-changing treatments for PTLS.

At the PTLS Hope Research Foundation, we’re dedicated to turning awareness into action. With your help, we can fund critical research, advocate for better resources, and create a future filled with hope for individuals with PTLS.

Let’s make March 8th a day of unity, progress, and celebration. Together, we can change lives!

Learn More and Get Involved - info@ptlshope.org